Welcome

THIS IS NOT A MEDICAL WEBSITE, THIS IS A WEBSITE BY A PATIENT

LindaHeadShotColorThis website has been created for shared information and as a support website. It seems to me that those of us with dystonia find little information except about Botox therapy. Few of us know about anyone who has been cured or people who have improved with treatment.

My hope is for people to be able to share stories of improvement and of resources.

Definition of Dystonia: A movement disorder characterized by involuntary muscle contractions which can include the head twisting or turning to one side or turning to one side or tilting forward or backwards, spasms in the eyes, or spasms or tremors in other parts of the body.